Advertisement

A career in nursing research: A personal journey

      When I was first approached by Bruce Hermann about writing my reflections on my research career, I found myself with writer's block for one of the few times in my life. I confessed to two of my close colleagues in epilepsy that I was having trouble writing my reflections because my career was atypical and that my journey included being a first-generation nurse researcher, personal experience with epilepsy, and struggles in getting my initial research funded. Both encouraged me to write about that personal journey. My personal journey follows in five sequential periods, beginning with my first position as a staff nurse in child psychiatry and ending in my postretirement period.
      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to Epilepsy & Behavior
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

        • Rutter M.
        • Graham P.
        • Yule W.
        A neuropsychiatric study in childhood.
        Clin Dev Med. 1970; 35/36: 1-265
        • ANA
        Nursing: a social policy statement.
        1980 ([Kansas City, MO])
        • McBride A.B.
        Theory and research: present issues and future perspectives of psychosocial nursing.
        J Child Adolesc Psychiatr Ment Health Serv. 1986; 24: 27-32
        • McBride A.B.
        The National Center for Nursing Research.
        in: Social policy report. Society for Research in Child Development, 1987: 1-11
        • Austin J.K.
        Stages in a family's reaction to epilepsy in a child (psychosocial aspects of epilepsy).
        Indiana State Nurses Assoc Bull. 1979; 5: 1-3
        • Ellis C.
        • Bochner A.
        Autoethnography, personal narrative, reflexivity: research as subject.
        in: Denzin N. Lincoln Y. Handbook of qualitative research. Sage, Thousand Oaks, CA2000: 733-768
        • Fishbein M.
        • Ajzen A.
        Beliefs, attitudes, intentions, and behavior: an introduction to research and theory.
        Addison Wesley, Reading, MA1975
        • Fishbein M.
        A reasoned action approach to health promotion.
        Med Decis Making. 2008; 28: 834-844
        • Albarracin D.
        • Johnson B.T.
        • Fishbein M.
        • Muellerleile P.A.
        Theories of reasoned action and planned behavior as models of condom use: a meta-analysis.
        Psychol Bull. 2001; 127: 142-161
        • Smith-McLallen A.
        • Fishbein M.
        Predicting intentions to engage in cancer prevention and detection behaviors: examining differences between Black and White adults.
        Psychol Health Med. 2009; 14: 180-189
        • Austin J.K.
        • McBride A.B.
        • Davis H.W.
        Parental attitude and adjustment to childhood epilepsy.
        Nurs Res. 1984; 33: 92-96
        • Austin J.K.
        • McNelis A.M.
        • Shore C.P.
        • Dunn D.W.
        • Musick B.
        A feasibility study of a family seizure management program: Be Seizure Smart.
        J Neurosci Nurs. 2002; 34: 30-37
        • McCubbin H.I.
        • Cauble A.E.
        • Patterson J.M.
        Family stress, coping, and social support.
        Charles C Thomas, Springfield, IL1982: 272
        • Whitman S.
        • Hermann B.P.
        Psychopathology in epilepsy: social dimensions.
        Oxford University Press, New York, NY1986: 309
        • Dunn D.W.
        • Austin J.K.
        • Huster G.A.
        Symptoms of depression in adolescents with epilepsy.
        J Am Acad Child Adolesc Psychiatry. 1999; 38: 1132-1138
        • Dunn D.W.
        • Austin J.K.
        • Harezlak J.
        • Ambrosius W.T.
        ADHD and epilepsy in childhood.
        Dev Med Child Neurol. 2003; 45: 50-54
        • Dunn D.W.
        • Austin J.K.
        • Perkins S.M.
        Prevalence of psychopathology in childhood epilepsy: categorical and dimensional measures.
        Dev Med Child Neurol. 2009; 51: 364-372
        • Austin J.K.
        • Huberty T.J.
        • Huster G.A.
        • Dunn D.W.
        Academic achievement in children with epilepsy or asthma.
        Dev Med Child Neurol. 1998; 40: 248-255
        • Austin J.K.
        • Huberty T.J.
        • Huster G.A.
        • Dunn D.W.
        Does academic achievement in children with epilepsy change over time?.
        Dev Med Child Neurol. 1999; 41: 473-479
        • Fastenau P.S.
        • Shen J.
        • Dunn D.W.
        • Perkins S.M.
        • Hermann B.P.
        • Austin J.K.
        Neuropsychological predictors of academic underachievement in pediatric epilepsy: moderating roles of demographic, seizure, and psychosocial variables.
        Epilepsia. 2004; 45: 1261-1272
        • Fastenau P.S.
        • Shen J.
        • Dunn D.W.
        • Austin J.K.
        Academic underachievement among children with epilepsy: proportion exceeding psychometric criteria for learning disability and associated risk factors.
        J Learn Disabil. 2008; 41: 195-207
        • Huberty T.J.
        • Austin J.K.
        • Risinger M.W.
        • McNelis A.M.
        Classroom performance and adaptive skills in children with epilepsy.
        J Sch Psychol. 1992; 30: 331-342
        • Huberty T.J.
        • Austin J.K.
        • Risinger M.W.
        • McNelis A.M.
        Relationship of selected seizure variables in children with epilepsy to performance on school-administered achievement tests.
        J Epilepsy. 1992; 5: 10-16
        • Cole R.E.
        • Reiss D.
        How do families cope with chronic illness?.
        Lawrence Erlbaum Associates, Hillsdale, NJ1993: 227
        • Thompson R.J.
        • Gustafson K.E.
        Adaptation to chronic childhood illness.
        American Psychological Association, Washington, DC1996: 382
        • Shore C.P.
        • Perkins S.M.
        • Austin J.K.
        The Seizures and Epilepsy Education (SEE) program for families of children with epilepsy: a preliminary study.
        Epilepsy Behav. 2008; 12: 157-164
        • Austin J.
        • Huberty T.
        Revision of the Family APGAR for use by 8-year-olds.
        Fam Syst Med. 1989; 7: 323-327
        • Austin J.
        • Huberty T.
        Development of the Child Attitude Toward Illness Scale.
        J Pediatr Psychol. 1993; 18: 467-480
        • McNelis A.
        • Musick B.
        • Austin J.K.
        • Dunn D.
        • Creasy K.
        Psychosocial care needs of children with new-onset seizures.
        J Neurosci Nurs. 1998; 30: 161-165
        • Caplin D.
        • Austin J.K.
        • Dunn D.W.
        • Shen J.
        • Perkins S.
        Development of a self-efficacy scale for children and adolescents with epilepsy.
        Child Health Care. 2002; 31: 295-309
        • Austin J.K.
        • MacLeod J.
        • Dunn D.W.
        • Shen J.
        • Perkins S.M.
        Measuring stigma in children with epilepsy and their parents: instrument development and testing.
        Epilepsy Behav. 2004; 5: 472-482
        • Shore C.
        • Austin J.
        • Musick B.
        • Dunn D.
        • McBride A.
        • Creasy K.
        Psychosocial care needs of parents of children with new-onset seizures. 3.
        J Neurosci Nurs. 1998; 30: 169-174
        • Austin J.K.
        • Shore C.P.
        • Dunn D.W.
        • Johnson C.S.
        • Buelow J.M.
        • Perkins S.M.
        Development of the parent response to child illness (PRCI) scale.
        Epilepsy Behav. 2008; 13: 662-669
        • Austin J.
        • Dunn D.
        • Huster G.
        Childhood epilepsy and asthma: changes in behavior problems related to gender and change in condition severity.
        Epilepsia. 2000; 41: 615-623
        • Austin J.K.
        • Harezlak J.
        • Dunn D.W.
        • Huster G.A.
        • Rose D.F.
        • Ambrosius W.T.
        Behavior problems in children before first recognized seizures.
        Pediatrics. 2001; 107: 115-122
        • Fastenau P.S.
        • et al.
        Neuropsychological status at seizure onset in children: risk factors for early cognitive deficits.
        Neurology. 2009; 73: 526-534
        • Hermann B.P.
        Developing a model of quality of life in epilepsy: the contribution of neuropsychology.
        Epilepsia. 1993; 34: S14-S21
        • IOM
        Epilepsy across the spectrum: promoting health and understanding.
        The National Academies Press, Washington, D.C.2012: 537
        • Austin J.K.
        • Hesdorffer D.C.
        • Liverman C.T.
        • Schultz A.M.
        • Testimony, Group
        Testimonies submitted for the Institute of Medicine report: epilepsy across the spectrum: promoting health and understanding.
        Epilepsy Behav. 2012; 25: 634-661