One of the goals of the Fourth International Workshop on Seizure Prediction was to provide an opportunity for patients with epilepsy and their caregivers to voice their perspectives on seizure prediction and related matters toward the goal of influencing the design of solutions. In an attempt to fulfill this goal, a survey of patients and caregivers, who often make or influence patient choices, was conducted on issues pertaining to living with epilepsy, epilepsy treatments, seizure prediction, and the use of implantable devices for the control of seizures. The results of this survey are reported here.
- 89 epilepsy patients and caregivers responded to survey.
- Strong interest in prediction of seizures.
- Preferred length of warning time was 3 to 5minutes.
- Reluctance to participate in clinical trials.
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- Living with epilepsy: report of a Roper poll of patients on quality of life.Roper Org., Inc., New York1992
- First International Vagus Nerve Stimulation Study Group. Vagus nerve stimulation for treatment of partial seizures: 3. Long-term follow-up on first 67 patients exiting a controlled study.Epilepsia. 1994; 35: 637-643
- A randomized controlled trial of chronic vagus nerve stimulation for treatment of medically intractable seizures.Neurology. 1995; 45: 224-230
- for the Vagus Nerve Stimulation Study Group. Vagus nerve stimulation for the treatment of medically intractable seizures: results of a one-year open extension trial.Arch Neurol. 1996; 53: 1176-1180
- Automated seizure abatement in humans using electrical stimulation.Ann Neurol. 2005; 57: 258-268
- Results of a multicenter double blinded randomized controlled pivotal investigation of the RNS™ System for Treatment of Intractable Partial Epilepsy in Adults.in: Abstracts, Annual Meeting of the American Epilepsy Society (AES). December 2009
- Responsive cortical stimulation for the treatment of epilepsy.Neurotherapeutics. 2008; 5: 68-74
- Implantation of a responsive neurostimulator device in patients with refractory epilepsy.Neurosurg Focus. 2008; 25: E12
- Closed-loop stimulation in the control of focal epilepsy of insular origin.Stereotact Funct Neurosurg. 2010; 88: 281-287
- Technology insight: neuroengineering and epilepsy—designing devices for seizure control.Nat Clin Pract Neurol. 2008; 4: 190-201
- Reassessment: vagus nerve stimulation for epilepsy.Neurology. 1999; 53: 666-669
- Electrical stimulation of the anterior nucleus of thalamus for treatment of refractory epilepsy.Epilepsia. 2010; 51: 899-908
- Patient perspectives: giving a voice to patients.in: Fourth International Workshop on Seizure Prediction. 2009 (Available at: http://www.iwsp4.org/program.htm)
- Views of patients with epilepsy on seizure prediction devices.Epilepsy Behav. 2010; 18: 388-396
- Hold your horses: impulsivity, deep brain stimulation, and medication in Parkinsonism.Science. 2007; 318: 1309-1312
- Seizure anticipation: from algorithms to clinical practice.Curr Opin Neurol. 2006; 19: 187-193
- Seizure prediction: the impact of long prediction horizons.Epilepsy Res. 2007; 73: 213-217
- The cost of epilepsy in the United States: an estimate from population-based clinical and survey data.Epilepsia. 2000; 41: 342-351
- The brainstorms series.Oxford Univ. Press, New York/London2007
Accepted: August 9, 2010
Received in revised form: August 5, 2010
Received: June 9, 2010
© 2010 Elsevier Inc. Published by Elsevier Inc. All rights reserved.